Carers Joint Strategic Needs and Asset Assessment (JSNAA), November 2019
As part of the Carers JSNAA, various engagement took place with members of the public. This included:
- Attending Carer Groups;
- Surveys within town centres;
- Focus groups.
The purpose of the engagement was to gather primary data in relation to the current status of Carers within the borough. The engagement was utilised throughout the JSNAA to ultimately inform the key priorities for South Tyneside. People involved in the engagement work included unpaid carers and non-carers; over 100 members of the public provided information to feed into the JSNAA.
The context to the discussion with current carers related to national statistics and the current National Action Plan, and whether or not this was a true reflection for the borough. The discussions with the non-carers centred on their knowledge base of current services and how it may impact them in the future.
The survey was carried out in Jarrow, Hebburn and South Shields to find out if people among the general population had an informal caring role and if they did, did they know where to get help and support if needed. If they were not currently a carer but became a carer or if they knew someone who was a carer, would they know where to go or where to signpost them for help and support? Results of the survey can be found below:
The feedback from the people involved in the engagement was used to directly inform the JSNAA of local statistics. The Joint Commissioning Unit provided verbal feedback to the carers groups on how the information from the engagement had been utilised but were unable to feedback to the public as the survey was anonymised.
Launch of Autism in Mind South Tyneside (AIM) – Me, myself and Autism, 5 September 2019
The launch was to enable people to find out more about AIM and how it will be delivered in South Tyneside along with the opportunity to hear from autistic adults who have completed ‘Me, Myself and Autism’ and the impact the course has had on their lives. Families and carers and staff from social care, health and third sector organisations took part in the launch.
The aim of the launch was to set the scene around Autism services in South Tyneside and the commissioning of new service and what the programme entails. AIM has been commissioned in South Tyneside to provide pre and post diagnostic support for autistic adults who do not have an associated learning disability and live in South Tyneside. AIM’s preventative support is delivered through weekly Connect Support Prevent sessions. AIM supports autistic adults with any challenges they are facing in their lives and offers a 10 week autism specific self-awareness and understanding course, Me, Myself & Autism. AIM provide preventative support to avoid individuals from finding themselves in crisis situations.
This was a celebration event and opportunity for AIM to network with stakeholders. The audience was given opportunities to ask questions about the new service and the response of audience engagement was observed. Past participants shared their lived experience.
South Tyneside Joint Commissioning Unit contacted all attendees following the launch to thank them for attending. AIMS set up network contact lists and have made contact following this event.
Launch of South Tyneside Enabler Partnership, October 2019
“South Tyneside wants people with learning disabilities and autism and their families to have a good life. We want people to have their own say about how they live their lives”
One of the ways we want to achieve this is by improving the support we offer people in the community – and South Tyneside Enabler Partnership (STEP) is a key part of this. STEP recognises and supports the values of individuals, their skills and relationships and the contribution that local communities can make as an alternative or to supplement professional health and social care services.
This approach has been piloted in Jarrow where Your Voice Counts, who help vulnerable people find a voice and gain control over their lives, run a successful drop-in. A drop-in has also been launched in Boldon with STEP drop-ins planned for a further four community localities across South Tyneside.
A networking morning with engagement tables took place with families, carers, and staff from social care, health and third sector organisations.
Always Events – Integrated Rehabilitation and Structured Education for Patients with one or more Long Term Condition – Patient Engagement
The ambition is to increase the uptake and reduce inequality of education and rehab support that enables people to live well with one or more Long Term Condition (LTCs). The engagement work has been carried out through Always Events.
The Always Events were launched on 7 August 2019, below is the slide pack from the launch event.
During the event patients, carers and professionals were asked to think about how access, knowledge and information could be improved. A summary of suggestions and feedback is below.
Attendees were also asked to map out the patient journey, see below.
As part of this engagement work patients were sent a link to a Long Term Conditions survey. results of the survey are below.
A full report of the engagement work, themes and feedback is below.
Palliative and end of life care in South Tyneside
The CCG has now received the final report following completion of the co-design process aimed at developing a new model for palliative and end of life care services in South Tyneside. The report summarises the process which was undertaken and outlines a recommended future model based on a ‘spoke and hub approach’, within which there is a strong emphasis on enhancing care in the community to enable people to be cared for in their own homes and communities if that is there wish. The hub represents a bricks and mortar facility which will be based in South Tyneside and include access to inpatient beds, enabling increased choice at the end of life.
The report was approved by the CCG’s Governing Body on 26th September 2019 with approval to continue to work with colleagues from across the system to develop the emerging model further.
The report is below:
A presentation was delivered to third sector colleagues at HealthNet on 4 October 2019 to keep them abreast of progress.
Palliative and end of life care Co-design Engagement Programme – what we did
We asked you to help us to develop the support that is provided to people who are in the last months or years of their life in South Tyneside, known as end of life care.
While the closure of St Clare’s was a sad moment for our community, it created an opportunity for us to look at how services that provide care for people at the end of life care are delivered. We worked with colleagues from across health and social care and chose an independent organisation to complete this work. It involved working with partners, families and carers across the borough to find out what is important to people towards the end of their lives.
We wanted to understand what is most important to people living in South Tyneside who have experienced end of life care and understand what people want. We wanted to create a new model that can deliver the best possible care in the borough.
We involved stakeholders, including local groups and families who have experience of palliative care services in the borough. We worked together to review the work and speak to people who are involved or have an interest in end of life care.
What we did
Working with families and carers, staff, ‘seldom heard’ groups and the voluntary and community sector.
- Worked with partners to design what end of life care should look like
Workshops were held in May 2019 with those people who were involved in the first part of this process to jointly develop a future model for end of life care services based on what people have told us so far.
A report summarising the work completed along with its recommendations was presented to the CCG in August 2019.
How people were involved
We understood that discussions around death and dying can be uncomfortable and difficult but people were keen to be involved.
The different ways people were involved included:
- Online survey with stakeholders
- Interviews with family members / people on the end of life register
- Interviews with staff
- Interviews with GPs
- Focus groups with staff
- Focus groups with members of the public
- Focus groups through the voluntary and community sector
- Stakeholder co-production workshops
Personal Assistant Market Development, 5 November 2019
The event on 5 November was part of a successful funding bid for Personal Health Budgets (PHB) with NHS England and Vision of South Tyneside for Personalised Care to scale up and expand the PHB and Personal Assistant (PA) market in South Tyneside. The event was to present where we are now and where we want to be. Strategic Alliance partners, health and social care staff, education staff, third sector organisations and families and carers took part in the event.
The aim of the event was to inform and then support the next steps of expanding the PHB and PA market. A contact distribution list was set up to support individuals and to invite them to future events and for attendees to be champions.
Development of a new Autism Strategy, July 2019
South Tyneside Joint Commissioning Unit held a focus group with parents of children and young people with Autism. The aim of the focus group was to discuss which services work well, areas for improvement and to explore which services may be required in the future.
Feedback from those involved in the focus group was on the issues facing both children and families of people with Autism. Issues around transition from children to adult services were highlighted along with the quality of provision. Issues were also identified around access to further education opportunities.
The information and feedback gathered was used to inform the Autism Joint Strategic Needs and Assets Assessment and the Autism Strategy and Action Plan.
Manage Your Mental Health
Young people have talked to Young Healthwatch about their mental health and their experiences of services.
As a group Young Healthwatch wanted to learn about the types of things that affect young people. To help do this they held monthly drop in sessions at South Tyneside College and over three months spoke to 250 students about different topics to see what the common themes were. The three most common were:
• Mental health
• Sexual health
• Drugs and alcohol
Young Healthwatch meet as a group monthly to discuss the findings and from the information they collated over 65% of students told them their mental health and wellbeing was most important to them with common things such as stress and anxiety being present daily. They told Healthwatch that they often did not know who to talk to or where to go.
Young Healthwatch South Tyneside decided it was important to raise awareness of mental health services available to children and young people in South Tyneside and to also review people’s experiences of any services they may have used and how services could be improved.
Young Healthwatch report is below.
Manage Your Mental Health Question Time
Young Healthwatch South Tyneside are reviewing mental health services for children and young people in South Tyneside and want the views of young people about the types of services they use, their experiences and how things could be improved. On Wednesday 15 May 2019 a Question Time took place at South Tyneside College 2-4pm. The event was attended by 40 people including professionals, parents and carers and young people. There were over 100 questions asked by young people about support for mental health, services and waiting times.
A report on Mental Health Question Time is included in the mental health report above.
Alliance Leadership Team
The South Tyneside Alliance Leadership Team was established to enable South Tyneside Health and Wellbeing Board to develop integrated commissioning and to align health and care services to improve the health and wellbeing of local people across the whole life-course.
Urgent Care in South Tyneside
At the 4th September Local Engagement Board/Health Fayre the CCG spoke to attendees about urgent care in South Tyneside. The feedback from members of the public was presented and discussed, along with information gathered at the CCG’s Patient Reference Group, at an Urgent Care Rapid Process and Improvement Workshop (RPIW) on 4 October 2018.
The feedback was used to help create a plan for Urgent Care in South Tyneside:
Family Health Services in South Tyneside
As part of Transformational Commissioning, a short survey was developed with the purpose of gathering information relating to the provision of family health services. The survey also asked about having a ‘Family Hub’ situated in four localities within the borough and how this idea was perceived by the people who would use it.
The Shared Lives scheme provides long term placements, short breaks and emergency support to adults with learning disabilities. Individual support is provided in an approved carers’ home so that the person can live in a family surrounding.
The Joint Commissioning team, working together with the Shared Lives team, were tasked with reviewing the Shared Lives concept and looking to see if there are any opportunities for development.
Three Champions with learning disabilities are part of the South Tyneside Learning Disabilities and/or Autism Strategic Alliance. Their role is:
To raise awareness about personalisation in South Tyneside;
To find out whether people have choice and control over the services they use and the support they get;
To be champions around the work of transforming services in South Tyneside.
Full details of the Champions work can be found below:
In March 2019 patients attending outpatient appointments at South Tyneside Hospital will be asked about the choices they were offered for their first appointment:
Members of the public were invited to complete an online survey via twitter:
A report summarising both surveys will be published here soon.
#Manage your Mental Health Campaign
Young Healthwatch South Tyneside are reviewing mental health services for Children and Young people in South Tyneside and want the views of young people about the types of services they use, their experiences and how things could be improved. Further information and the link to the survey is in the following leaflet.