Palliative and end of life care in South Tyneside
The CCG has now received the final report following completion of the co-design process aimed at developing a new model for palliative and end of life care services in South Tyneside. The report summarises the process which was undertaken and outlines a recommended future model based on a ‘spoke and hub approach’, within which there is a strong emphasis on enhancing care in the community to enable people to be cared for in their own homes and communities if that is there wish. The hub represents a bricks and mortar facility which will be based in South Tyneside and include access to inpatient beds, enabling increased choice at the end of life.
The report was approved by the CCG’s Governing Body on 26th September 2019 with approval to continue to work with colleagues from across the system to develop the emerging model further.
The report is below:
Co-design Engagement Programme – what we did
We asked you to help us to develop the support that is provided to people who are in the last months or years of their life in South Tyneside, known as end of life care.
While the closure of St Clare’s was a sad moment for our community, it created an opportunity for us to look at how services that provide care for people at the end of life care are delivered. We worked with colleagues from across health and social care and chose an independent organisation to complete this work. It involved working with partners, families and carers across the borough to find out what is important to people towards the end of their lives.
We wanted to understand what is most important to people living in South Tyneside who have experienced end of life care and understand what people want. We wanted to create a new model that can deliver the best possible care in the borough.
We involved stakeholders, including local groups and families who have experience of palliative care services in the borough. We worked together to review the work and speak to people who are involved or have an interest in end of life care.
What we did
Working with families and carers, staff, ‘seldom heard’ groups and the voluntary and community sector.
- Worked with partners to design what end of life care should look like
Workshops were held in May 2019 with those people who were involved in the first part of this process to jointly develop a future model for end of life care services based on what people have told us so far.
A report summarising the work completed along with its recommendations was presented to the CCG in August 2019.
How people were involved
We understood that discussions around death and dying can be uncomfortable and difficult but people were keen to be involved.
The different ways people were involved included:
- Online survey with stakeholders
- Interviews with family members / people on the end of life register
- Interviews with staff
- Interviews with GPs
- Focus groups with staff
- Focus groups with members of the public
- Focus groups through the voluntary and community sector
- Stakeholder co-production workshops
Manage Your Mental Health
Young people have talked to Young Healthwatch about their mental health and their experiences of services.
As a group Young Healthwatch wanted to learn about the types of things that affect young people. To help do this they held monthly drop in sessions at South Tyneside College and over three months spoke to 250 students about different topics to see what the common themes were. The three most common were:
• Mental health
• Sexual health
• Drugs and alcohol
Young Healthwatch meet as a group monthly to discuss the findings and from the information they collated over 65% of students told them their mental health and wellbeing was most important to them with common things such as stress and anxiety being present daily. They told Healthwatch that they often did not know who to talk to or where to go.
Young Healthwatch South Tyneside decided it was important to raise awareness of mental health services available to children and young people in South Tyneside and to also review people’s experiences of any services they may have used and how services could be improved.
Young Healthwatch report is below.
Manage Your Mental Health Question Time
Young Healthwatch South Tyneside are reviewing mental health services for children and young people in South Tyneside and want the views of young people about the types of services they use, their experiences and how things could be improved. On Wednesday 15 May 2019 a Question Time took place at South Tyneside College 2-4pm. The event was attended by 40 people including professionals, parents and carers and young people. There were over 100 questions asked by young people about support for mental health, services and waiting times.
A report on Mental Health Question Time is included in the mental health report above.
Alliance Leadership Team
The South Tyneside Alliance Leadership Team was established to enable South Tyneside Health and Wellbeing Board to develop integrated commissioning and to align health and care services to improve the health and wellbeing of local people across the whole life-course.
Urgent Care in South Tyneside
At the 4th September Local Engagement Board/Health Fayre the CCG spoke to attendees about urgent care in South Tyneside. The feedback from members of the public was presented and discussed, along with information gathered at the CCG’s Patient Reference Group, at an Urgent Care Rapid Process and Improvement Workshop (RPIW) on 4 October 2018.
The feedback was used to help create a plan for Urgent Care in South Tyneside:
Family Health Services in South Tyneside
As part of Transformational Commissioning, a short survey was developed with the purpose of gathering information relating to the provision of family health services. The survey also asked about having a ‘Family Hub’ situated in four localities within the borough and how this idea was perceived by the people who would use it.
The Shared Lives scheme provides long term placements, short breaks and emergency support to adults with learning disabilities. Individual support is provided in an approved carers’ home so that the person can live in a family surrounding.
The Joint Commissioning team, working together with the Shared Lives team, were tasked with reviewing the Shared Lives concept and looking to see if there are any opportunities for development.
Three Champions with learning disabilities are part of the South Tyneside Learning Disabilities and/or Autism Strategic Alliance. Their role is:
To raise awareness about personalisation in South Tyneside;
To find out whether people have choice and control over the services they use and the support they get;
To be champions around the work of transforming services in South Tyneside.
Full details of the Champions work can be found below:
In March 2019 patients attending outpatient appointments at South Tyneside Hospital will be asked about the choices they were offered for their first appointment:
Members of the public were invited to complete an online survey via twitter:
A report summarising both surveys will be published here soon.
#Manage your Mental Health Campaign
Young Healthwatch South Tyneside are reviewing mental health services for Children and Young people in South Tyneside and want the views of young people about the types of services they use, their experiences and how things could be improved. Further information and the link to the survey is in the following leaflet.